How frustrating

Your 4-month old son has a rare and fatal inability to fight infections. A procedure has saved over 40 of the 60 or so children who have gone through it, but it is considered experimental and so Medicaid will not cover it. It is costly, around $500,000. What do you do?

Go on MSNBC and raise awareness.

Visit msnbc.com for breaking news, world news, and news about the economy

You can donate to http://www.sethbenjamin.org. Here's what they say on their website [I've added a couple of links]:

Seth Benjamin Petreikis was born July 21, 2010. He was born with a heart condition that required open heart surgery at 2 1/2 weeks of age. 3 days after surgery he was diagnosed with a rare, fatal disease called complete DiGeorge Syndrome. Only 5-12 children are born with this yearly. With this syndrome Seth has no T cells and cannot fight off any infection or virus. This condition is fatal by age 2.

Seth is in need of a life saving thymus tissue transplant. The only place those are done is at Duke Hospital in North Carolina under Dr. Louise Markert.

This procedure is not covered by our Medicaid. If successful, Seth's outlook is great. By the time he is 3 he will have a normal immune system.

Everyday is a gift from God especially for Seth.