Started my day off with a bit of a tear jerker...

But hopefully one with a happy ending. I was reading the Wall Street Journal about a man who built a research company to try to find a cure for two of his children who suffer from Pompe's Disease. Over the years he's gotten investors, created a company, and then sold it to a larger one and run their Pompe programme with the hope of getting the medicine, an enzyme, produced faster. In order to get the medicine through trials quickest, he had to sign off an order that would set up trials, but for groups too young to include his own children. Attempts to set up trials where they could be included were hampered by his position with the company, so he left to spend more time with his family. Now, the children are in a trial and, although responding differently from the medicine, there's hopeful signs of improvement. I won't link to the Journal article, because it's only available to subscribers...but if you want part of the story, check out: KRT Wire | 03/12/2003 | In race against time, dad works to find cure. It shows what committed families can do, given networking and drive. And granted, you could argue that not every parent has a background in finance or is a Harvard alum--but getting the word out and sheer stubborness counts for a lot, I think.