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Showing posts with label Illness. Show all posts
Showing posts with label Illness. Show all posts

Saturday, December 30, 2017

Reflections on 2017

2017 was an incredibly difficult, terrible, horrible, no-good year.  I say, good riddance.  In 2017 I:

  • Lost my mother to end-stage liver disease.
  • Lost a job I'd been at for twenty years, that I loved.
  • Was unemployed for several weeks, with all the uncertainty that brings.
  • Had a lot of general anxiety.
  • Spent an inordinate amount of money on keeping my health insurance going through COBRA.
  • Watched the country and the world go down the tubes in terms of politics [in my opinion].
  • Dredged up childhood fears of nuclear Armageddon thanks to the insane, narcissistic morons in charge of two major countries with weapons of mass destruction.
  • Watch what I thought was a great relationship (not mine) unravel due to addiction on the part of one spouse, despite all efforts of the other.
Some good things did work out for me in 2017:
  • I managed to ave for the new building or donate most of the professional medical library I worked in to India, including the journals. 
  • I was only unemployed for seven weeks, having been requested back at my old employer in a different capacity due to higher volumes to do contract work--no benefits, but it kept the lights on.
  • I moved in with a friend to share expenses, someone who I've known for 30 years, whom people have always said we should live together, which we've always resisted, and it's working out really well.
  • Moving forced me to put my therapy into practice and completely de-hoard my belongings.  Some are in storage.  Many were donated or discarded.  I wish I could have gotten everything to charities, but still, I donated a lot. I'm now basically living in a room with a bookcase bed with drawers, two nightstands, and the use of a cedar chest and closet, and I'm much happier to not be crushed under mounds of stuff accumulated over my (mostly) adult life.
  • I recently was hired by my old employer as a regular worker.  While it's for quite a bit less money than I had been making as a librarian, I have full-time work with benefits and was able to go back to regular health insurance, etc.  I like the people I work with, I'm still very invested in the work the non-profit does in caring for children with disabilities and musculoskeletal issues, and it's nice to still be around people I care about.  If the right library job came along, I'd certainly apply.  But right now, at least I'm working and doing okay.
  • Thanks to living with a great cook who makes healthy vegetarian food (as opposed to just bread and cheese, my mainstays), I've lost weight.
Things I hope will work out in 2018:
  • I'm learning to de-stress with my work responsibilities and handle the volumes and duties necessary.  I want to continue improving so that I don' t really feel overwhelmed like I did in the first few months I worked.  I'd like to get to a point where I don't just come home exhausted on big-volume days wondering why I am doing what I'm doing.  I want to do what I'm doing and loving it, or barring that, find a job that I love being there for.  That's one reason for the lack of blogging; I simply am too tired most nights, because I've given my all at work.  I think that's getting better, though.
  • I hope I can make changes to improve my health.  Watching my mother die of liver disease was very disturbing.  She smoked and had an unhealthy relationship with food and exercise for most of her adult life, had the misfortune to have diabetes (our entire family on my maternal side is pretty much diabetic, pre-diabetic, or at risk for it) and COPD (much of that was from smoking, but her father and I both also had/have asthma and breathing issues, so there was already an underlying propensity).  When the only thing that could have saved her was a liver transplant, she was still smoking (or at  least vaping), wasn't exactly compliant with her choices, and pretty much ran out of time between those and her age, although she was only 69, which these days is fairly young to die, especially when your mother lived with diabetes into her nineties.  What I realised was that with the exception of smoking (which I have never done), a lot of her food issues and genetics were passed down to me.  We were both overweight, although she dieted regularly when I was young, and that scarred me a little, and I've resisted it partly for that reason.  But I could eat much more healthily and not emotionally.  The diabetes gene is there, but I could improve my illness through lifestyle changes such as eating well and moving more.  Her fatty liver and eventual non-alcoholic cirrhosis may have had a genetic component but is common in diabetics, but it too can be helped through wellness changes.  When she was my age, her main indicator of what would eventually kill her was a few liver enzyme lab results that were slightly off and had been for some time.  I've had that same issue for awhile.  You know what happens when you go into this syndrome?  For one, you're more likely to get liver cancer.  My mom did, and they did an ablation and the tumour got better, but her bloodflow through the liver was impeded, so then when that happens, your ammonia builds up (as well as other toxins) to the point where you get very confused (she once put a Bic lighter in the microwave thinking it was soup, and my stepfather managed to catch her before she hit it on), and you have pints of fluid on you that have to be drained by parencentis (think of a big needle drawing fluid out of your abdomen).  You have to take LOTS of a liquid laxative that is awful and deal with the inevitable consequences to keep the ammonia and fluid from building up.  It's horrible.  She was in and out of the hospital for weeks on end in the months before she died, often unable to speak or be understood, and when she was finally put into hospice, my step-father said it was a terrible way to go, that she was in a lot of pain.  So it was a blessing when it was over.  I am so glad my step-father was there every step of the way.  Whatever anyone can ever say about him, he was a very good husband, and I wish him all the best.  He dealt with my mom's illness, her death, the death of their dog, his mom's infirmities (the lady's in her 90s), and a whole bunch of drama related to his sons' addiction issues.  I so wish him a much better 2018, too.
Okay, I guess I'd better start working on those notes.  But first I'm going to have dinner.  Good night.

Wednesday, November 11, 2015

I feel a little guilty

about not going to the hospital tonight after I got out of my appointment, but since they shut down visitation during shift change, I'd have had to gone about 8:30 pm, and from what I gather, nothing much has changed, except she was moved to another unit within the hospital and can squeeze a hand if asked, since she's on a ventilator and cannot speak. I did check with the nurse this morning and her husband tonight. Tomorrow I have yet another appointment after work, physical therapy, and so if she's still in the hospital Friday I'll visit. I would hope she wouldn't be, but I think she probably will. She's pretty sick. It's hard to see her like that, though, and I will say, her husband is doing a good job of being by her side, although I'm sure it's wearing on him. He'd driving home every night after being there all day to take care of his 93-year-old mother, a dog, and a cat, and then coming back each day, and he's about 45 minutes away one way, and he's no spring chicken. In the midst of some of her issues his dog had an infection and had to have emergency surgery and his sister died of a heart attack--so it's been a very rough two or three weeks for him.

I have a somewhat complicated relationship with her, and while we were very close, too close really, once upon a time, we don't see or talk to each other often. But I hate to see her suffering, and I do love her, and it's very sad and I just haven't processed it quite yet, her mortality. Getting older is no picnic, but being older and having multiple conditions any one of which can quickly kill you sucks majorly. It also makes me examine my own life and future, and maybe some changes I could make. I can't imagine losing her, but I'm very much afraid that I will, and soon--if not this hospitalisation, then one to come. It makes me very sad to think about it, although it's tempered by the reality being faced. And as difficult as it is for us to watch, it must be horrible for her. I know the tubes and wires are really making her uncomfortable, and she was obviously frustrated by not being able to speak. My hope is that she can get off all of that and return home, and soon, to her pining cat, crazy dog, and her husband. I know that's where she would want.

Monday, November 09, 2015

Yesterday I was away from my phone for awhile

and when I returned, I had a text message saying a close relative was on life support. Another family member had called, asking for an update, and another e-mailed. I called the her husband, who texted me, got some details, and put my laundry that I had been doing at my friends' house, which was still damp or wet, into the car and went over to the University of Kentucky, to one of the ICUs in the hospital there for a couple of hours. I won't go into the particulars, but my family member is very, very sick. Today she is at least awake, although unable to talk due to the variety of tubes, including a ventilator, but is breathing on her own as well and hopefully will be off it soon. So there has been some improvement. But she'd still in pretty bad shape, and it was sad to watch her trying to communicate without being able to. I went over after work, getting caught in a traffic snarl when a procession for a paramedic from a local community who had been struck by a vehicle while on duty last week, and who has since died, was held to carry his body home, which I thought was a very sweet and moving thing to do, so it didn't matter to me that it took me 20 minutes to go one block to get to the hospital parking structure. I stayed till about 7, grabbing some food at the hospital cafeteria with her husband and stepson before I left. Then I came home and updated some other family members and spent awhile on the phone with YKWIA about what was going on. Anyway, it's been a rough couple of days, particularly for her.

Tomorrow evening I get a physical therapy evaluation for my neck and back, and there's appointments after work Tuesday, Wednesday, and Thursday to take a friend to. I'm also trying to get ready for my Chicago trip next week, and working on that job application. Tomorrow I'm in scheduling for the morning and have a webconference for a meeting of a professional organisaton, the Kentucky Medical Library Association, in the afternoon, and then there's PT, so I'll most likely not be able to go visit after then. But her husband said he'd keep me posted.

I think I'll go do some reading and maybe listen to some music and wind down for the night. Tomorrow morning is an early day at work, so I'll turn in pretty soon. Good night.

Sunday, December 30, 2012

Game called on account of illness

Which is disappointing, but can't be helped. So I'm staying home today after all. I downloaded some Kindle books last night and today, so I shan't be bored. I might check out what's new on Netflix, too. Brenda was going to take me to get my very own cane; now she'd not coming into town, so I'll see if my stepfather will stop at the pharmacy either when we leave or come back for the visit.