27 Books
Added:
Born, like other comic book characters, out of an otherwise trivial but life-changing animal bite, the Rabid Librarian seeks out strange, useless facts, raves about real and perceived injustices, and seeks to meet her greatest challenge of all--her own life.
I have put in 15 applications, 6 today alone. I'm doing what I can to find a job as quickly as I can.
My unemployment benefit claim has been denied because I did not understand the waiting week--I thought it was the first full week after you apply, when actually they backdate your week to the beginning of the week in which you apply. So, for me, I lost my job on a Wednesday and applied that day, so my waiting week started February 15th, even though I was let go on the 18th. While I was reeling from that and applying for unemployment, Medicaid, SNAP, and everything else I could think of, calling about my retirement and how to pay off my line of credit and the dryer I'd bought through my paycheque, I'd put in a couple of applications, but in fact I'd needed to put in five. When I had to put in the claim, it became obvious that I'd been wrong about the week (the first week following I did have five, and was fine on the requirement, because I thought that was my waiting week, and I already had enough lined up for the next week--this week to make everything work.
I went ahead and appealed it immediately, throwing myself on their mercy. I really didn't understand the wording of their FAQs, the phone just referred me back to those FAQs, and the Internet just let me down completely, because it seemed to say it was the week after, too. I explained that I often have trouble understanding certain concepts that may seem cut and dry to most people, due to my autism, which is often the case. They did say at the time to keep claiming it in case they decide to grant it later.
In the meantime, I do have Medicaid, which was a big one to me, as my healthcare is a priority.
This is an introduction to autism presentation in women in graphic novel format, aimed at young adults aged 11-18, so it was a quick read as I was making coffee this morning. I found it informative, but I especially found the bits about how autistic women are often the victims of abuse in relationships because they fail to form a network of female friends in their adolescence to help them navigate dating and sexual relations. This is my experience. In her book, Sarah Bargiels described how they were forced to learn to be assertive on their own and how it finally empowered them. I never did. I got stuck, so I just shut down in this area and stopped dating. I divorced in 1991 and stopped dating about 1994. Period. It wasn't worth it, I told myself. Maybe this diagnosis will change this--I don't know. But it could, now that I know what's going on, it's definitely a part of my life I should talk with my therapist about.
I was looking at a list of autistic traits, and I'd never thought of doodling as autistic 'stimming'. I did this all through school. I didn't need to really do notes back then, or at least didn't think I did, and did well enough on exams; this belief was underscored. Given that later I took notes for our Cthulhu game, initially for myself (I didn't know it would be for posterity and for the group, and that I'd be doing it 34 years later), my notes from then would suck. Those early notes are full of doodles, but little content, and of course I remember little of the stories, and I've gone back and looked at the modules, but our game master does so much improvision and modification there was no way to get the notes right, and most of the people who played are gone on to other things and are unavailable. I have tried to reconstruct them, trust me. But when I was younger and unmedicated, and therefore my memory was less impaired, I did actually remember more of my classes, and there was structure, and I comprehended most of what I heard, plus I was pretty much bored because I'd read the assignment and many of the lectures were just out of the book, so in my boredom I drew doodles in the margins and took few actual notes. It worked for me at the time. I got A's and occasional B's in secondary school and early college. Things started to unravel once I started to have a social life, and I lost the structure that I'd had in high school in school in college. I still did okay, but let's just say I only made the dean's list my freshman year. I needed to start taking notes, but if anything, I just doodled more, because it was a way to soothe my anxiety.
Also, two of the things they list that are missed in girls a lot are twirling hair and biting nails. Also me. My mom had to get this bitter stuff to put on my nails. I'm surprised my hair didn't break off, too.A large-scale international study has revealed that autism diagnosed in early childhood is genetically and developmentally distinct from autism diagnosed later in life. Researchers analyzed data from over 45,000 autistic individuals and found that early-diagnosed children often show social and behavioral difficulties from a very young age.
The Mindful Guide for Adults Living with Autism: Empowering Adults with Autism, Thrive in Work, Love, and Self-Discovery by Steven Fainasked about getting diagnosed with ADHD or autism in later life and how someone went about it. So I wrote this. It seemed the best way to explain what's been going on here:
I had a friend we heavily suspected was autistic, and my roommate was reading an article to educate himself in interacting with him, when he realised it all applied to me, then had me read it without bias, and I realised it applied to me, right down to the clumsiness (lack of proprioception awareness). I was poleaxed. I'd already been diagnosed a decade before with ADHD at 48 and was on medication [both diagnosis and medicine had been covered by my work health plan]. I began to look at online resources and tried to find local places to seek a diagnosis. Someone online mentioned Embrace Autism, which was great--I highly recommend her site, and I took the validated tests and came out pretty much squarely autistic, which increased my drive to seek out an actual psychological diagnosis locally, but it was really hard. The only place I could initially find was a college in another town (I have driving anxiety), but they had a 5-year wait. I'm in central Kentucky in the US. Finally, I found a private psychologist who did assessments. Still, since my insurance does not cover autism assessments (she does not take insurance anyway), I socked more money into my flexible spending account at work this year. I used it for the assessment since it is a behavioural health expenditure that is covered by that; it's just out of pocket. After several sessions of interviews, observations, and a variety of testing (including a questionnaire for a friend who had known me for 40 years--my family had all pretty much passed away), I was diagnosed with Autism Spectrum Disorder Level 1 in March, right before my 58th birthday, with the full report received last month. All told, it was about $1300. People ask me why I did it. Partly, it makes everything make more sense. I wasn't just the ugly ducky-nay, ostrich trying to make it in a swan world. And it helps me try to figure out how to make the rest of my work years work. I've had some trouble with changes going on at work, with new responsibilities and changes in jobs over the last few years. I used to be a librarian; now I work in a busy clinic, and it's very different, and I'm struggling. I'm trying to find ways to navigate that. I'm trying to strengthen relationships and basically figure out how to act like my brain is more together than it has been without being inauthentic. I've masked so long I don't even know who I am anymore, or who I ever even was. This gives me a chance to figure out before it's too late. I couldn't figure out the masking thing at first and then it hit me that when you do it, you're not just say, modeling off of one person, you're modeling off of more than one, plus people you see on TV, plus anyone you meet, and you lose all sense of self, to the point where you bury the real you. Not only is that exhausting, but that person is so far down, there's almost no way to unpeel the layers to get to them. When I was young and depressed from my homelife, I'd surpressed emotions and personality to the point I'd had to find the real me and almost had to be dragged out of a whole fantasy world I'd been hiding in (hyperfixation to a high degree I guess), and I'd thought that was bad, and now I have to consider that even then with masking I wasn't completely finding the real me. Now I'm going to focus on getting to the person I would have been. Not the person who I would have been 'if only I'd been diagnosed earlier' or 'if only they'd seen the signs'. But the person I always was. Just me. But still able to function at work, still able to not freak people out by being too weird. I have friends who love me even though they know I'm weird, and I cherish them, even though I sometimes frustrate them to no end. I couldn't try to do that if I didn't know about my autism. It's the first step. One of the first recommendations of the psychologist was to find a therapist (who did take my insurance) who is versed in autism challenges, which I have done, and we're working on that. Another was to find a community, either online or locally in person, or both, and this group is part of that, where I can be myself. I hope that helps.
The psychologist I went to was very thorough, had a clear understanding of neurodivergence, and I would highly recommend her. Here is her contact information, if you are in the Lexington area:
Neurodiversity Consultants LLCI've only read four books this year. The last one was Your Knee Replacement: A Patient's Guide to Understanding Knee Arthritis, Preparing for Surgery, Maximizing Your Outcome, by Ryan C. Koonce, MD. OrthoSkool Publishimg, 2019. ISBN: 9781733135849 (that's the eBook ISBN).
In the meantime, I have a VERY large to-be-read pile.
Here are the books I have out from two different libraries to read:
LEXINGTON PUBLIC LIBRARY
New Imaging Technique Identifies Autism Markers with 95% Accuracy
Summary: Researchers have developed a system that detects genetic markers of autism in brain images with 89-95% accuracy, potentially enabling earlier diagnosis and treatment.
This method, which identifies brain structure patterns linked to autism-related genetic variations, offers a personalized approach to autism care. The technique, called transport-based morphometry, could transform the understanding and treatment of autism by focusing on genetic markers rather than behavioral cues.
Key Facts:
- The system uses brain imaging to spot autism-related genetic variations.
- Accuracy of the method ranges from 89-95%, promising earlier diagnosis.
- This approach could shift autism diagnosis from behavior-based to genetics-based.
The monkey is from my therapist, a reminder to calm 'monkey chatter' when I'm anxious. The post-it was given to me by my supervisor the day before my surgery when I had a massive panic attack. I need to remember to be mindful. It works for autism meltdowns, too, I'm sure.