So it's Saturday

and so far I've taken a shower, gotten ready, gotten gas for my car, stopped and got a couple of breakfast sandwiches, gone through a therapy session, and I'm at Tire Discounters right now getting an oil change. They've also checked my tyres, which I'm hoping to replace at the end of the month, and let's just say a few prayers that they hold up in the meantime would be appreciated.

I should be asleep

But I'm not very tired, which is a little odd.  I was pretty active today, walking over 7500 steps, although I did not go to the Y and work out, mainly because I had some errands to run that had to be done today and while I could have gone to open swim after 8:15 pm, that's a little late.  I don't know about exercising that late.  Of course, it's a warm water pool and it's pretty relaxing, so maybe it'll be fine.  I'm definitely going to try to go to the gym Saturday for a much longer time, try the Nu-Step machines and the pool and try to figure out where the sauna is, as that's always nice to end with.  (I did see where the hot tub is. I've never been in one but it looked very inviting.

I was sharing things from my newsfeed on Facebook and apparently, I got share-silly because a pop-up window came up asking me if I was a robot; I had to check the box to continue.  I need to be doing more sharing on this page; I've hardly written anything all summer.  I'm going to take the 'habit' I have on my phone on Habitica (the app that's a productivity one but with avatars and roleplaying game trappings that I've used for years now) and make it a daily, meaning I'll be more likely to think to write.

There are several applications I'm using right now that I'm finding useful for my health, beyond the one that comes with my activity tracker or something like Samsung Health or Google Fit.  I highly recommend them:

Daylio -- This is a mood tracker that I've used now for over 1100 days (I know, I have entries for that many).  Given that I have Bipolar Disorder II, it's been really helpful in seeing how my mood varies.  I'm generally in the good category, so that's nice to see.  It allows you to track activities as well that might contribute to the mood.

PainScale -- This app allows you to track where and how intense your pain is, as well as a journal, keep track of treatments, triggers, and you can also track food to see if what you're eating is contributing.  It keeps track of the weather and activity factors as well.

Ate -- This one is in beta.  It's a visual food diary that has you take a picture of your meal and then answer a few questions that have to do with mindfulness--why did you eat, who did you eat with, where did you eat, etc., and rather than keeping track of nutrients and calories, it asks were you 'on path' or 'off path'.  It also calculates the time between eating.  So instead of working with minutiae, you're getting to the reasons why you eat and how mindfully.  I mentioned it to my therapist, actually, as in addition to cognitive-behavioural therapy she includes mindfulness. I'm seeing her about every three or four weeks.

Okay, I think I will try to go to sleep, maybe listen to some soothing music.  I've been listening to the collaborative album Ed Sheeran put out all day, and I've now got 'South of the Border' stuck in my head.  I like it, don't get me wrong, but it's too damn catchy.

Have a good night.

So

On Wednesday, I graduated from aquatherapy (got the shirt to prove it). :)  Now I could go to the pool at Cardinal Hill for $5 a visit and work out there, but that would get pretty expensive pretty quickly if I want to do it two or three days a week, and I'd have to get there by 5:15 pm to get anything done, as the pool closes at 6 pm. I usually get off work at 5 pm--I had a special schedule where I got to come in early and leave early on Tuesdays and Thursdays temporarily, but as we progress into autumn and winter it will be less likely I can do that (I'm very light-sensitive in the morning as far as waking up, which is why I bought an alarm clock that lights up in the morning.)

It has different modes including cycling through colours, an evening mode where it shuts off after a certain time, one that changes colour to do with the humidity and temperature, and then a guided breathing one.  But most importantly, a little before the sound alarm goes off, the light gradually brightens to bright white when it's time to wake up.

Anyway, I talked it over with my therapist and I decided to join the YMCA last weekend.  I was able to get 10% off and no joining fee through work, with everything prorated for September.  I tried to go to the pool last Monday, actually, (only Beaumont YMCA has a warm water pool like the hospital), but the heater was out.  They got it fixed later in the week, though, so yesterday I went and spent some time doing my exercises.  It was during an open swim, so there were a couple of families with small children in it, but I did fine, at least until they were playing with a ball, but I still managed to get all my walking in, most of my leg exercises (I forgot a couple), but did forget to do my arm ones.  I'll do better next time.

On Monday [tomorrow], however, there is a class that I think I'll try to go to that's a basic workout in the pool.  Tuesday I have my first real session of cognitive-behavioural therapy for fibromyalgia.  Wednesday I'm going to try to go to the Y again for open swim and do my exercises, and then again on Saturday.  I hope to make that a standard thing.

Today I'd thought about going because we weren't playing the game, but I'm having a slight reaction to a shingles vaccine [my second dose], where my arm hurts a bit and my joints and muscles are aching a little.  So I didn't quite feel like getting into the pool today.

Anyway, that's what's going on these days with me.  I thought I'd actually sit down and blog for a bit.

Well

I got the swimsuit yesterday (right after getting my medicine, which had to go to a different pharmacy due to the unavailability of my small independent pharmacy to get that low dosage of Lyrica from the distributor--apparently it's getting ready to go generic and supplies are low, but Kroger has some stockpiled in their warehouses) and driving home in a torrential downpour.  I sat in the car for about 20 minutes while it rained, then it finally broke a bit and I dashed to get the package (which was thankfully plastic, much as I hate the stuff), and then went over to pick a friend up from another friend's and have dinner with them.

So I didn't get to try on the suit until almost 11 pm when we got back.  It was, to put it mildly, interesting.  It does technically fit.  I normally wear a 3X in clothing, or in American sizing, 26-28.  I went for 4X and 28-30 thinking I probably needed some wiggle room.

One, it's from a Chinese company, and apparently, they don't consider that women that size have large breasts.  I had to squeeze my bosom into rather small cups (my bra size is a 48DD).  This was definitely a B cup.  Two, while the bottoms did just fit, the top bunches a bit under my breasts and has to be pulled down.  Plus it's really hard to get into.  But...I can bend over and move fine in it, and it may stretch a bit over time.  So for now, I'll hang onto it.

On the other hand, it occurred to me that I may still have the bright pink swimsuit.  I'm going to check the tubs in my storage unit just to be sure.  It fits better, I think, and even if I keep the other, it wouldn't be bad to have two suits because chlorine does a number on them.

The aquatherapy is supposed to be twice a week for 8-10 weeks at Cardinal Hill Rehabilitation Hospital.  They have a 5-foot deep pool to do exercises in.  I'm trying to get my boss to adjust my schedule once I've gone to my initial visit so I don't miss work or have to take personal time off.

Dr Abbas also wrote a referral for cognitive behavioural therapy with a psychologist.  According to him, aquatherapy and CBT together reduce fibromyalgia pain about 50%.   That, along with the Lyrica, will hopefully help with the pain.  The Lyrica pills are tiny (they're just 25 mg, the lowest dose they make).   So that'll probably be once a week, so three appointments a week, hopefully, the latest they can get me in.

I'm at work right now, in the break room. I don't clock in for another 15 minutes (and I'm blogging on my phone hotspot, not the hospital's network).  I came in at 7:30 to see how easy it would be to adjust my schedule.  It wasn't too bad.  My main problem is when it gets dark in the morning in the fall and winter.

I'm in the break room, and I stopped by my office and got my fan from my desk, so I'm sitting here with it on.  I'm just always so hot after walking through UK to get here, especially as muggy as it's been here lately.

We're having an employee appreciation pizza party, with door prizes and such.  There was going to be a talent show, but I think that was cancelled.  Anyway, after noon there are no surgeries or anyone in clinic, and we'll shut down.  I may be able to go home early today.  I have a lot of phone calls to make today, especially on offsite imaging requests, scheduling ultrasounds and MRIs.  I'm about a month out on my surgery authorizations (yay!)

Okay, I guess I should pack up and get ready to clock in.  Have a great day!

Being proactive (finally)

When I was about 25 or 26 I was diagnosed by a specialist they brought in at UK's Student Health with fibromyalgia. At the time there were doctors who didn't believe it even existed, and there wasn't much to do about it, except try to stay active to stave off the chronic pain. There's no blood test, and at the time there wasn't much they could do medication-wise. And so I've lived for decades with a lot of pain that limited my activity levels. I finally decided a lot had probably changed since 26 or 27 years ago and it was worth going to a rheumatologist to see if anything can be done. So I went this morning and turns out that I'm doing a lot of things right already. I use my CPAP religiously. I'm on medication that helps with anxiety and depression. I used to do yoga but can't get up from the floor anymore, but he suggested doing chair yoga or modified poses. He also prescribed 8 to 10 weeks aquatherapy and some cognitive-behavioural therapy, both of which studies show reduce pain 50% together with no other treatment. He also put me on a very small dose of a medication, the lowest available given the other meds I'm on, but my pharmacy didn't have it, or Kroger on Tates Creek either. My pharmacy tracked down one that had it (apparently the low dose is not popular). But since it's a controlled substance (but not an opioid) the Kroger pharmacy has to request a new prescription from the doctor. So I can pick it up tomorrow. I'm really hoping all this will help and I can be more active.
Also, when they weighed me I had a crossbody purse on with my phone, etc. in it, and it was already lower than I expected. So I've lost about 8-10 lbs in the last couple of weeks without trying. That was nice.

When I moved away from the apartment, which had a pool that I rarely got in due to having a bright fuschia swimsuit that made me feel like a giant pink blobbie, I got rid of the suit and gave it to Goodwill. So today I ordered a new suit for the aquatherapy. Here's hoping it fits fine and makes me feel less conspicuous than the old one did. I've attached a photo on a model. 
Meanwhile, I have both initial appointments made and I've emailed my boss about tweaking my schedule when I know more about how often I need to go to therapy and when. 

Alright, time for bed. Good night. 

x