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Sunday, December 26, 2021

Please send good thoughts

So the sensor to my glucose meter is expiring in a little over an hour, but I can't replace it, even though I do have others, because Tuesday morning I have an MRI and I can't wear it (it has metal in it), and I don't want to waste a ten-day sensor for just a little over a day's time. So it's back to pricking my finger for about 36 hours. Not bad, really, in terms of the timing.

I am nervous about the MRI for a few reasons. One, I'm claustrophobic. They've given me hydroxyzine to take a little while before to take the edge off. Second, it looks like I'll have to lie flat for about 45-60 minutes. I sleep with a CPAP. I'm a little iffy on breathing while flat for that length of time. I may ask if they can put the fan on. Third, it's an MRI/elastography of the abdomen to measure the pliability, of lack thereof,  of my liver. Back on the summer, I had an ultrasound/elastography and I had to spend some amount of the time exhaling all my breath out (in a mask) and then holding without breathing over and over, so my abdomen would be still. It made me light-headed. I'm thinking this might be the same, and that's why she didn't want to sedate me. (An open MRI was not an option, as the images would not have been clear enough). Lastly, this is to see just how damaged my liver is. I know it's enlarged. The ultrasound indicated cirrhosis due to non-alcoholic fatty liver disease. If that's the case, it's very serious. It could mean liver tumours, advanced liver disease, paracenteses (drawing fluid off the abdomen that had built up with a long needle), encephalopathy from a build up of toxins (think loopy as someone dealing with dementia--my mom once put a lighter in the microwave, and my stepfather caught it before she turned it on...she'd thought she was making soup), even an eventual wait for a transplant. If it isn't full-blown cirrhosis, but a milder stage, that's great, and there are things I can do to reverse our stabilise it. I've already lost 25 lbs., although that was mostly from being put on another diuretic. That's one thing I can do, along with lifestyle changes and exercise. So it's good to know exactly what we're dealing with. But I'm nervous and a little scared. My mom died of this, and it was terrible. If you wouldn't mind, send some positive thoughts my way Thanks!

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